I’ve been a Type 1 Diabetic for almost 25 years. I’m 30 years old and live in New York City. I’ve been using an insulin pump for nearly 15 years. I’d like to share my experiences and learn from others with T1D.
Your feedback, comments, and shared experiences are most welcome! Please comment and let me know what you think!
I went to a networking event tonight. Part of the night was watching several business presentations. It was kind of a competition, but in the end everyone was a winner because of the networking opportunities. Anyway, one of the presentations really hit home for me. It was http://savvy.coop/ – check out their site.
Here is how they describe themselves:
“What is Savvy Cooperative?
In order to improve health care, there must be a clear understanding of the patient experience and a collaborative environment for the patient voice and feedback to be heard. That’s why Savvy Cooperative connects the Savvy Crowd (healthcare consumers, patients & loved ones) with Savvy Partners (recognized market & scientific researchers and other professionals) through our innovative online platform. We believe that when both sides bring their unique expertise to the table, we can deliver more patient-driven solutions to market, faster!”
My essential understanding of it is that Savvy Cooperative brings together two groups, those with chronic ailments and big pharma. The value proposition goes something like this – big pharma needs feedback from people who live with chronic ailments everyday so that they can improve their products. Those with chronic conditions want to give companies feedback so that big pharma can improve the products they make for those same people. For their time and insight, people that join the Savvy Cooperative community will be paid. I don’t think anyone will be getting rich from being part of focus groups, filling out surveys, and partaking in research studies, but getting paid to help improve a company’s products that you use is a pretty good deal. Plus, your insights will help everyone that suffers from the same condition that you do.
I recently started using the Dexcom G5 continuous glucose monitoring system. After a few days with it, or maybe just one night, I ended up on the phone with one of their certified diabetes educators. I spent over an hour asking questions and giving them feedback on the phone for free, just in the hopes that they would improve their product so that my life could be better. It would have been really nice if I had gotten paid for that time and insight.
The Savvy Cooperative is a really cool idea. I signed up to be part of it tonight. You should to. It isn’t just for diabetics. It’s for all kinds of conditions. It can’t work without the experience and insight of people like me and you so sign up and make your insight work for you! Visit http://savvy.coop/ to sign up 🙂
Hey Nathan Nation,
Long time, no see. Trust me, it isn’t that I haven’t thought of you… it’s just that I haven’t felt inspired to keep posting. However, I recently found a bunch of videos online about Type 1 Diabetes. I have had t1d for almost 25 years and found that these particular videos inspired me in an unexpected way. I’ve always been solitary when it comes to my diabetes. I’ve never been interested in support groups or hanging out with others who have t1d. In fact, I don’t think I know anyone else who has t1d (I’ve met people with it, of course, but I don’t have any friends who have it/regular contact with other t1ds). Watching other people talk about their experiences as diabetics made me want to share my experiences.
With all that said, I am not going to proclaim an end to this blog as a place for sci-fi and fantasy. What I will be doing is adding new content pertaining to t1d and my experiences. I’m hoping people can learn from me and that I can learn from them – engage in a dialogue if you will.
Just thought I’d let y’all know.
I had so much fun reading Abercrombie’s The Blade Itself that I’ve decided to do another dramatic reading from it! This time it will be from a Glokta chapter. Inquisitor Glokta is one of my favorite characters in the series. He was once a proud, beautiful, arrogant, promising military officer, until he was captured by the Gurkish during a cavalry charge (he fought for the Union against the Gurkish empire). The Gurkish did horrible things to him… unspeakable things. For two years he was kept prisoner and tortured under the Emperor’s palace. Once a treaty was signed between the two nations the once beautiful Sand dan Glokta was returned to the Union, but he was only a husk of the man he used to be, barely a shadow of a man at all. He joined the Inquisition and now he tortures confessions out of people for the state.
Glokta is a unique character in the series. He is a cripple and he has a terrible attitude about everything, even being alive! His every moment is constant agony. Glokta is the only character in the series that the reader gets a serious look at his inner workings. The reader often knows Glokta’s thought process, suspicions, ambitions, etc. Personally, I started off liking him just because he was a torturer and I like to read about people getting tortured. It makes me cringe, and in a strange way… I like that words can do that. As I read on and got to know Glokta more intimately he appeared to be someone worthy of pity and loathing. He is a complex character… a deep character.
Keep your eyes and ears peeled for this next video. I know I’m going to have fun making it!